This is a bit incoherent, but so are my thoughts right now.
From this morning:
I've just spent the past hour reading Maya's sensory evaluation (short version - her issues most likely do not stem from sensory processing difficulties, but may very well be a sensory integration issue, in any case the cause is most likely emotional/psychological, not neurological).
However, and this is a big however, the report is full of factual errors and flaws that I will have to have corrected. I'm upset and angry too, because most of the errors make Jay and I out to be utter morons, and if the O/T heard things this way then she obviously thinks we're capable of it. Not to mention that these factual mistakes cloud the ultimate evaluation. Things like "Maya is neophobic. She is very limited in what she is willing to eat.... Maya insists on a set number of bottles of chocolate milk before bed."
First off, Maya no longer gets bottles.
Second, I have never in my entire life put anything other than breast milk or later cow's milk in a bottle, certainly not chocolate milk.
Third, she only gets about 1/2 a very small glass of chocolate milk in the morning, and none at all in the evening.
Fourth, even when she was still getting her "two bottle of milks" (milk! plain milk!) before bed, each one only contained about half an ounce! Yes, she had two because it was her comfort item and very important to her and the psychologist felt we shouldn't try to take them away until she was ready, but it's not like she was guzzling down gallons of milk - she hasn't done that in over three years! I'm not an idiot - obviously she wouldn't be interested in eating a lot if she were being given huge quantities of sugary chocolate milk, which is how the report makes it sound.
The report also goes on and on about "cognitive difficulties". Maya has been through a huge amount of testing over the past two years, and the one thing all the professionals have agreed on is that her difficulties are NOT cognitive!!! Yes, she has a lot of challenges and no, it's not been an easy path, but the one consistent encouragement we've gotten is that Maya has extremely high cognitive abilities which will be a tremendous help to her as she works to overcome these challenges. The overall O/T report was also a lot more negative about her future compared to all the other professional evaluations (psych, speech, Child Dev Agency, etc.) that have been carried out.
Obviously I will insist on having the report corrected and the findings reevaluated accordingly, but I'm so angry and frustrated and am definitely calling the skills of the O/T into serious question. I feel like we've contributed a great deal to this effort, both in terms of time and money, and we got back crap in return. Oh, and the icing on the rotten cake of my morning?An hour from now I have to go meet with Maya's preschool teacher to receive her official IEP (personal plan) for this year. It will hopefully be pragmatic and not have any major surprises, but still. It will, yet again, lay all of her "deficiencies" and "problems" right out there in black and white. Again.
This is not shaping up to be a good day so far...
Then from this afternoon:
All the other reports we've received over the years have been much more accurate, including the IEP I just got from her teacher - this one was spot on. It identified all the same strengths and areas needing work that we have, set appropriate goals and targets, and is utilizing appropriate means to work towards them...
The O/T report is just simply a piece of crap put together by a woman who is either unforgivably sloppy or else utterly incompetant. I spoke to a (geriatric) OT friend of mine a few minutes ago who strongly suspects that this woman is not qualified to carry out this evaluation and bets that she is not certified for it, since apparently very few O/T's in Israel are. (Money-grubbing much?) For the cognitive problems, she suspects that she has mixed up (!!!) "cognition" with (sensory) "perception", which is an area where Maya does struggle. She (Maya) certainly does NOT struggle with cognition, a fact which was just confirmed AGAIN in black and white in the school report, and by the teacher's discussion of providing her with advanced work in various areas to best meet her capabilities.
At least the school meeting went well and left me feeling positive and empowered again. I knew all along that Maya was in the right place getting the right supports, and this just emphasized that I was right.
Now to go take something for this headache and then to pick up my gorgeous and very unique daughter.