Wednesday, April 2, 2008

WFMW Redux - Inflammatory Breast Cancer

This week's WFMW is a "greatest hits" edition. Some of the other tips I've given (for things like making placemats out of children's art, bug-free flour, lice prevention, easy birthday cakes and toy swaps) get a lot more hits than this one, but since the importance of this so far outweighs the others this is the one I'm reposting.


I'm taking advantage of the high traffic WFMW to share this very important post from WhyMommy with as many people as possible. In a way, this is truly my best parenting advice - take care of your own health so that you can stay healthy and stay alive for your children. All the rest is window dressing. Important, yes, but it pales in the face of simply being able to be there.

I've talked before about Inflammatory Breast Cancer, and how my friend in the computer is fighting winning the fight of her life right now, but this message is so very important that it bears repeating again and again:


Did you hear that? You DON'T have to have a lump.

Rather than retyping that old post, I'm going to let WhyMommy's words speak directly to you. She says it better than I ever could, because she's living it. It's not just a warning to her. It's the battle for her life.

We hear a lot about breast cancer these days. One in eight women will be diagnosed with breast cancer in their lifetimes, and there are millions living with it in the U.S. today alone. But did you know that there is more than one type of breast cancer?

I didn’t. I thought that breast cancer was all the same. I figured that if I did my monthly breast self-exams, and found no lump, I’d be fine.

Oops. It turns out that you don’t have to have a lump to have breast cancer. Six weeks ago, I went to my OB/GYN because my breast felt funny. It was red, hot, inflamed, and the skin looked…funny. But there was no lump, so I wasn’t worried. I should have been. After a round of antibiotics didn’t clear up the inflammation, my doctor sent me to a breast specialist and did a skin punch biopsy. That test showed that I have inflammatory breast cancer, a very aggressive cancer that can be deadly.

Inflammatory breast cancer is often misdiagnosed as mastitis because many doctors have never seen it before and consider it rare. “Rare” or not, there are over 100,000 women in the U.S. with this cancer right now; only half will survive five years. Please call your OB/GYN if you experience several of the following symptoms in your breast, or any unusual changes: redness, rapid increase in size of one breast, persistent itching of breast or nipple, thickening of breast tissue, stabbing pain, soreness, swelling under the arm, dimpling or ridging (for example, when you take your bra off, the bra marks stay – for a while), flattening or retracting of the nipple, or a texture that looks or feels like an orange (called peau d’orange). Ask if your GYN is familiar with inflammatory breast cancer, and tell her that you’re concerned and want to come in to rule it out.

There is more than one kind of breast cancer. Inflammatory breast cancer is the most aggressive form of breast cancer out there, and early detection is critical. It’s not usually detected by mammogram. It does not usually present with a lump. It may be overlooked with all of the changes that our breasts undergo during the years when we’re pregnant and/or nursing our little ones. It’s important not to miss this one.

Inflammatory breast cancer is detected by women and their doctors who notice a change in one of their breasts. If you notice a change, call your doctor today. Tell her about it. Tell her that you have a friend with this disease, and it’s trying to kill her. Now you know what I wish I had known before six weeks ago.

You don’t have to have a lump to have breast cancer.

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P.S. Feel free to steal this post too. I’d be happy for anyone in the blogosphere to take it and put it on their site, no questions asked. Dress it up, dress it down, let it run around the place barefoot. I don’t care. But I want the word to get out. I don’t want another young mom, or old man, or anyone in between, to have to stare at this thing on their chest and wonder, is it mastitis? Is it a rash? Am I overreacting? This cancer moves FAST, and early detection and treatment is critical for survival.

From Robin again:

Everyone who reads this, please, go do your monthly breast self-exams. Don't just look for a lump. IBC is NOT characterized by a lump. Please go right now and read these descriptions of the symptoms of regular breast cancer and inflammatory breast cancer, and if you find anything questionable, please, PLEASE, go see your doctor. Knowledge is power and early detection is critical.


StephanieB said...

Thanks for the important post, I had no idea! Love your banner, and your kitchen by the way :)! Take care!

Leora said...

Thanks for all the links at the top. Helps me since I'm new to your site (I liked your lice prevention post; I have a "lice, eeeks!" post on my site).

Women should do both breast detection measures as you mentioned and educate themselves on prevention (exercise, diet, breastfeeding, emotional health). Exposure to pesticides has been a link for some. Lots of information but NO easy answers.

Robin said...

An excellent point Leora.

PS Read the comments on the lice post for a natural method of treatment.

Nancy said...

Always worth a reposting, you never know who may have missed it first time around.

And indeed ... she is WINNING ... she's such a great inspiration.

Thanks for the reminder =)

Anonymous said...

Thanks, Robin. This is so great to see ... you were one of the first to realize what was going on, and it was so important to me that I went and got it checked right away! I didn't realize ... if ANYTHING is different, it merits a call to the doctor!

Sigh. Hope your week is going well!

MOMMY said...

Thank you for posting this! I actually am going to my OB/GYN tomorrow because my left breast has been "feeling funny" and occasionally leaks (I do not nurse and my youngest is 22 months old). Even though the symptoms are not the same I am going to mention your post.

I also will have to take a look at your placemat link! Looks interesting!!!

Robin said...

Hi Susan, it's good to see you here ((hug)). Every time I read one of your updates, I am so grateful that you went to the doctor when you did so that you could start fighting and beating this thing.

My week's going fine. Long, but fine LOL. (My husband is away until Saturday morning.)

Unknown said...

Thanks for reminding me. My mom died of breast cancer. The lady who sits behind me in my office is fighting it now. We all have to be aware and keep on top of it.

Shannon said...

Such a great post and so important! I did not know about this type of cancer but now I do. Thanks!

Casdok said...

Very imformative post. O learnt a few things, thank you.

Anonymous said...

Robin, this was wonderful. Thanks for posting and reposting this.

Anonymous said...

Thank you for keeping IBC in front of everyone, so they can be educated. I lost my beloved daughter Tina to this monster 7 months ago. Education is power and through power maybe we can erase IBC

Bubba said...

Thanks for stopping by...and linking back to your very informative post on your blog. I wish posts like these weren't necessary...breast cancer sucks.